“MOM!!! I finished the entire book!!!” exclaimed our 8-year-old son as he bounded down the stairs at 9:30pm…a full hour after it should have been “lights out”. He was waving his chapter book in his hand as evidence. At first I wasn’t sure if I should reprimand him for not being asleep or congratulate him on the completion of his first chapter book. Quickly, my common sense took over and I hugged the excited boy and congratulated him on his accomplishment.
This may not seem like a big deal to most people but our son is a struggling reader, as is his older half-brother and father. I, on the other hand, learned to love to read at an early age and had a voracious appetite for reading throughout both childhood and adulthood. To learn that the reason our son was a struggling reader was a result of being dyslexic just broke my heart. I had awful visions of him preferring to hang by his fingernails rather than read a book, just as my husband and step-son do today, because it was such an unpleasant activity. To deprive himself of all the wonderful journeys that books could take him on was incomprehensible to me. And so began my own personal journey into how to make sure that our son didn’t become part of the “I hate to read” group and instead foster the “I love to read” attitude in him that I had grown up with.
In the past year, that journey has taken many diverse paths to help our son become a better reader, from vision correction to occupational therapy and everything in-between, and it is far from over. But I would like to share one tool that has really helped our son improve his reading, and more importantly, foster the love of reading that all children should have.
It all started last summer, when a fellow homeschool mom shared with me a wonderful tool she uses with her children to help them become better readers. She visits the local library and borrows books on CD (or tape) along with the corresponding book. Each day she has her children read one chapter out of the book with the CD playing along – TWICE. After they’ve read the chapter twice they then read the chapter back to her without the aid of the CD. This method offered her children the ability to practice reading with limited assistance from mom! What a great idea! I can’t wait to get started!
The problem with this method for our child, however, was that he was not yet able to read chapter books and the local library had a limited supply of audio CDs and tapes for early readers. Additionally, our child had difficulty following along with the narrator either because the pace was too fast, or he simply was unable to keep track of where he was on the page (a common symptom of dyslexia). For us, it was a frustrating process of trying to rewind, or go forward, to find his place over and over again. It was anything but enjoyable and before we knew it we had exhausted all the few easy reader titles available at the library anyway.
Then one day while sharing a waiting room at the occupational therapist’s office, another mom shared with me about a non-profit organization called Recordings for the Blind & Dyslexic (RFBD) (www.rfbd.org). She had an 11-year old daughter who was profoundly dyslexic and whose reading greatly improved as a result of using RFBD’s services and in conjunction with other remediation methods. I was intrigued and needed to know more.
RFBD has an online catalog of over 53,000 books, including text books, available on Audio CD. All a member has to do is place an order for the Audio CD(s) they want, then borrow the corresponding edition of the book from the local library so the child can follow along in the book while listening to the Audio CD.
Big deal, you say. I can get a book on CD or tape from the bookstore or library. That’s true, but here’s what makes these RFBD Audio CDs unique:
The Audio CDs themselves are produced on proprietary media with unique navigational features. They look like ordinary Audio CDs but they won’t play in ordinary CD players. They will only play in special players offered by RFBD. These special players have key navigational features that ordinary CD players do not have. Most notably:
- The ability to go to a specific page or heading simply by pressing the “Go To Page” button on the player. This is a key feature for our son. No more guessing in how far to rewind or move forward the CD! He could get to where he needed to be at the push of a button!
- The ability to slow down or speed up the cadence of the narrator. This, too, was critical for our son’s reading success. The CDs are recorded by volunteers at normal talking speed but a struggling reader can’t keep up with reading print at that pace. By pushing either the Speed Up or Down buttons, the child can select the pace of the narrator that is just right for him. Now, not only can he can read the words and not have to stress about trying to keep up and miss the meaning of the words but he’s no longer limited to readers; he can read and follow along in chapter books, too!
- The ability to tell my son where he left off in his book. Often times, the bookmark falls out of my son’s book and because he can rarely remember what page he was last on, it’s quite the challenge to find the right page by resuming play on a player. However, by simply pressing the “Where Am I” button on the player, it tells him exactly what page he’s on!
- The ability to bookmark pages…up to 10,000 if desired (although I’m not sure who would ever use that many).
RFBD has a comprehensive catalog of over 53,000 available books, including textbooks, on Audio CD. That’s far more than any local library will have available on hand! Once the order is placed via their website, the Audio CD usually arrives within 1-2 weeks (sent via Free Matter). And if you’re looking for a certain book that isn’t part of their 53,000 book catalog, then you can request for them to record one for you.
The Audio CDs are FREE to qualifying members. That’s right…FREE! You are not charged for the Audio CD and are not even required to return it. It’s yours to reuse as often as you keep it in your possession. There is a one-time registration fee of $65 and an annual membership fee of $35. There’s also the one-time cost of the proprietary CD player which costs from $259 – $895. To qualify as a member, your child’s disability must be certified by an acceptable professional such as a physician, ophthalmologist, optometrist, vocational rehabilitation counselor, neurologist, learning disability specialist, or a psychologist with a background in learning disabilities.
Initially, I had our son using RFBD’s Audio CDs twice a day. In the morning, I had him take an easy to read/follow-along book (eg. Frog and Toad) and had him read a chapter twice before reading it back to me without the use of the Audio CD (these sessions were independent of his bible reading time and my read-aloud times with him). At bedtime, he would take a more difficult chapter book (eg. Boxcar Children) and read for 20 minutes using a timer. Except that, to my complete surprise, the 20 minutes never took! Of his own volition, his reading sessions at bedtime lasted from 60-90 minutes! In the three months that we have been using RFBD, he has become a much better reader, expanding his vocabulary, and improving his fluency AND comprehension. The real payoff, however, is the absolute JOY that exudes from him after reading several chapters or finishing a book and begging me for the next one. Begging me!!! For him to have that wonderful, joy of reading is exactly what I had been hoping and praying for!
Our precious son was born a dyslexic and will die a dyslexic. He will continue to learn to become a better reader as we continue on this journey but it will never come easy for him. With tools like RFBD, however, he has already won half the battle because he has learned to love to read despite those difficulties!






























Irene:
It was SO good to see your blog on my reader. And with such GREAT news! Thanks so much for blogging about this. I am so happy for your son! Hooray! Doesn’t it just make your heart soar!
We’ve struggled w/reading here, too. Vision Therapy and OT have helped a great deal. And I was thrilled the first night the two of us stayed up late reading together, and she finished a book of 300 pages. The first book she ever finished. She is now initiating research for her own school work. My job as teacher became easier as she’s more self directed. What a relief.
I wish you and your son well on the continued journey to unlocking the keys to his dyslexia. He’s got a wonderfully committed family!
Still hoping we can meet one day and find a few letterboxes together.
Much warmth,
Maria
http://www.eclecticallyyours.typepad.com
Maria,
You were the first one to comment on my blog article but for some reason WordPress put you through their spam filter and I didn’t check that folder until today! What great news about your daughter! I am so encouraged to hear about your successes!
Letterboxing? Who has time for letterboxing?!?! LOL. A sad state of affairs, indeed. One day soon we’ll be resuming!
Best, Irene
wow! thanks for sharing this story, irene. as an avid reader myself, i realize what an INCREDIBLE gift you are giving to your child. by sharing w/ us, you’re offering that gift to others. YAY!!
Dear Irene,
Thank you for sharing your inspirational story. RFB&D is thrilled and proud to be available for you and your family.
All my best to you, DS1 and the rest of the Tascheks.
Andy Malavsky
Chief Marketing Officer
RFB&D
Learning Through Listening
amalavsky@rfbd.org
Dear Irene,
Thanks for sharing your positive experience with RFBD. I will definitely look into this.
You also mentioned that you have used vision therapy and occupational therapy. I was wondering if you found these therapies to be beneficial?
My 9yo son has his first appointment with a VT (post evaluation) tomorrow. He is going to try a month of ocular phototherapy. The total proposed cost of therapy is soo expensive…
If we do the sensory integration therapy (which my dh has ruled out at this time) and the ocular phototherapy and the 4 to 6 months of vision therapy, it could be $8,000.00 plus.
So, Irene, if you’ve got a minute to respond…What are your thoughts about OT and VT?
Thank you in advance for your time.
Take care, Patti Champion, patchamp@bellsouth.net, 205-664-4043, 205-587-2145
It’s too bad the cost of utilizing this is so high. I have been trying to figure out how my son could utilize this organization’s audio books but the high cost is a problem, even though his first year’s membership is free. He is also eight years old and visually and auditorally dyslexic and ADHD.
If the cost of the player is what’s holding you back I just wanted to let you know that you can also download RFBD recordings and use certain mp3 players to play them. I don’t know all the the ones that work (iPods do not) but we use the Sansa Clip and I’ve seen them on sale for as little as $35. I’m not sure if it’s as easy to navigate as the CD player, but my 11 year old prefers it to the player. I just download the books to Windows Media Player, then upload them to the mp3 player.
I did the same thing with library books on tape for my older son, but RFBD has been a Godsend for my second dyslexic child.
Patti,
In addition to being dyslexic my son also has ADHD.
He did need reading glasses for his headaches and eye strain and could use some minor vision therapy to negate the need for glasses but we decided to wait on the vision therapy to until after he finished his OT (our pediatric ophthamalogist said his vision issues were not in any way related to his dyslexia).
Our son did just finish 3 loops of Tomatis listening therapy (www.tomatis.com) in conjunction with other OT at the same facility at a cost of $6500. He had numerous sensory integration issues, including auditory processing disorder in his left ear, balance issues, bi-lateral issues and depth perception issues. His issues were not profound so the results were not dramatic but rather casual as the therapy progressed. He doesn’t fall out of chairs or from a standing position any longer, seems to have better control of his extremeties, seems to be more organized, is more independent with his assignments and his accuracy of work has improved. And according to the listening tests at the end of his third loop, his auditory processing disorder has been corrected.
He is scheduled to have a reassessment at the end of July at which point they will make their next recommendation (hopefully not another 3 loops!).
Hope this information helps!
Irene
Cheryl,
We found the equipment to be costly, too, but the results have been so fantastic that it’s hard to even complain about it! Try giving the folks at RFBD a call. Maybe there’s some sort of assistance for the purchase of the equipment and/or registration fees! You never know unless you ask! They’ve been really helpful!
Irene
Hi Cheryl,
Please contact me directly at the email address below so we may discuss how best to help address your concern.
Thank you Irene for your continued support.
Andy Malavsky
Chief Marketing Officer
RFB&D
Learning Through Listening
amalavsky@rfbd.org
Our family is working with a special education lawyer and a child neuropsychologist for my 5th grade son who has a severe language disability, dyslexia and ADHD. I will be sending this info. to them to get this approved as a learning accommodation through the local school district.
Blessings to you for sharing this.
~Mrs. D
Thank you for sharing this on our yahoo group HSExKids. I am going to look into this as well for my son. I am in the same shoes as you- 8 yo son who “hates reading” is dyslexic, and I have always been an avid reader. It has broken my heart to hear him repeat the hates reading phrase over and over. I have recently discoverd the Barton reading tutoring system and am sure we will start seeing results from that – but this RFB&D would give him access much sooner to the wonderful world of books. He has not been formerly diagnosed as the testing is quite expensive in our area. His Psychologist suggested it looked that way and the school does not test specifically for that, though he did qualify for special ed help with reading. Any suggestions on low cost testing so we can have access to this wonderful resource? We are in Washington State near the Portland metro area.
Taina,
If your son’s psychologist has training in learning disabilities then he is qualified to certify you.
If not, even though you are homeschooling, you should still be able to utilize services through your local public school district…including testing. Public school districts rarely use the word “dyslexic” when testing for reading disabilities. Not to worry. RFBD doesn’t need to know the name of the disability…just that your child has a print disability, such as a learning disability, visual impairment or other physical disability. Don’t be shy about inquiring and fighting for what your tax dollars already pay for.
Failing the assistance from your public school district, check around your local homeschool support groups to see if there are any recommendations from the struggling learners sect about affordable local testing centers in your area.
I had my son tested at a local learning center for $500 and our insurance would have paid for it except we hadn’t reached our deductible yet. The same may be true in your case with certain testing facilities.
Refer to RFBD’s certification page at http://www.rfbd.org/certification.htm for more info. You can always contact RFBD’s Member Services for additional help on how to best get your son certified. Their number is 800-221-4792. They are most helpful.
Good luck to you & your son!
Irene
Taina,
One last comment…I looked into the Barton system for my son and he bombed the pre-test precluding his ability to start even at the ground level. Since he had other sensory integration issues we decided to try the “bottom up” approach with Tomatis listening therapy in tandem with other occupational therapy rather than go down the “top down” approach offered by the traditional tutoring methods. Barton is a wonderful program and has been immensely successful with many, many children & adults. And even though it might have taught our son how to eventually read better, it would not have resolved his other issues. The hope in using the bottom up approach is that once all the lower levels of the brain are optimized and his senses are working optimally with one another, that it will filter up to the executive levels of the brain (where academics occur). We’ll see! We may end up needing to use Barton after all is said and done but we don’t know just yet.
Irene
Do you know if the folks at RFBD would consider the Scottish Rite group’s evaluation of my son enough evidence to let us use their services? If so, I wanted to mention this service to Taina because it is free!
I don’t. But the Chief Marketing Officer of RFBD is following this thread so maybe he can answer that question! Thanks, Patti!
Dear Patti Champion –
Please send an email with your contact information to my attention at the following address – amalavsky@rfbd.org – and I will be happy to help point you in the right direction.
Andy Malavsky
Chief Marketing Officer
RFB&D
amalavsky@rfbd.org
Irene,
One more question…well, actually two….
You wrote…”There’s also the one-time cost of the proprietary CD player which costs from $259 – $895.”
Do you mind me asking which of these players that your son uses? This seems to be the biggest expense. Oh and another “too lazy to look up the meaning” question….what does proprietary mean?
Thank you, Patti
Patti,
We use the Victor Reader Classic Plus. I chose that one because it appeared to be sturdier than the others and because it had a handle on it making it convenient to take into the car or move from room to room.
Proprietary basically means it’s not free and the rights to the technology (whether it be hardware or software) are legally owned by an entity.
Best, Irene
Patti,
If you didn’t see my reply to Cheryl above, check out the AudioAccess program where you can download to your computer and the upload and play books on certain commercially available MP3 players.
Irene -
What a wonderful review of a great product. I am going to order one for our son as although he is reading beautifully after two years of therapy twice a week for dyslexia – I think his comprehension would improve with this tool.
You have turned me onto so many wonderful products that have helped my tradionally schooled children improve that I am forever grateful. Time4learning was just the tool I needed for my 5 year old daughter when she was struggling with Math. After 3 months with the program her teachers came up to me and said what are you doing with Brooklyn? I asked why and they said she had jumped to the top of her class.
I too have Dyslexia, I was diagnossed in third grade (due to my good coping skills I managed to get through to the 3rd grade without being able to read). My Mother whom I hated at the time was like a pitbull on crack when it came to making sure I got the help I needed to enable me to read. I am a voracious reader as a result and couldn not imagine life without books. As an adult I apprecaiate all she did for me even though our relationship suffered for many years as a result. She is my Hero for being a Parent first and a friend second and allowing me to have such an incredible and full life.
My “gift of dyslexia” has enabled me to travel the world, become an excellent listener and salesperson. I think a little diferently than others and that is a skill that in my field has helped me not hindered. My Son shares the same diagnoss I know with support and time he too will be successful in whatever he sets his mind towards.
You are a beautiful writer by the way and hope that you use that gift someday as you have so much to share!
Irene,
I just finished reading your latest blog. As usual – you never do anything halfway & I am sitting here with tears streaming down my face. I am still waiting to hear all of your updates on RJ – we never did get together to catch up on that.
I am especially intrigued because as you know, I am dyslexic. I also have auditory processing disorder – not sure if you knew that, but I’m sure you will agree that in all the years you have known me, it never appeared to slow me down.
I know that my English education was the major reason I was able to accommodate both of these conditions and develop the coping skills that helped me rise above them. The learning process there, was much more in-line with the needs of a dyslexic than a typical American education.
As a result of my testing (not until the age of 40), I also know that I was blessed with a high IQ, as are so many dyslexics, and that too helped me to succeed.
What I also know is that if I had known & understood all of this when our son was growing up, and had the opportunities to do what you are doing for RJ, our lives might have been very different today and we may still have a relationship with him. Today is his 38th birthday and we have just found out that he is separated from his wife of 5
years. Another year has passed in which he continues to blame the world for everything that is wrong in his life, and most especially me. We have no contact with him & I continue to cry buckets knowing that we have a son who is completely estranged from us.
RJ may be struggling with learning challenges, but what he will never struggle with is the love and commitment to his success that his mother has. You are a hero and as always, I never cease to be in awe of your abilities and your focused commitment in whatever you do.
Once I knew why I always felt “different” – that it was dyslexia, I never once looked at it as a disability. Rather, I have always thanked God for this very special ability that allowed me to think differently than most other people. I love being a different processor because I think it gives me an edge that normal processors don’t have. I know it has helped me have some pretty significant successes in the business world along the way. If you can give RJ that perspective, he will grow up with a view of life that will help him not to think of himself as a victim, but rather as someone with an amazing talent. Once he learns how to channel that, the sky is the limit for him. I wouldn’t trade
being a dyslexic for anything.
What RJ is learning now are the coping skills that will help him until the day he dies. While I am grateful for my learning difference, the one thing I would have changed is the opportunity to develop more sophisticated and well honed coping skills at an early age. I didn’t have the opportunity to do that because I didn’t know why I was different until age 40. As I get older, I do see that the dyslexic challenges become more apparent. It is one of the reasons I am glad I am still working, it forces me to be more disciplined. Oh, at age 62 I would love to retire and take it easy, but since God has other plans, I feel so blessed that He has provided me with a job that I enjoy and that stretches my mind every day.
One more thing, because right now you are the primary source of RJ’s journey to success, don’t forget yourself along the way. Be good to YOU and don’t forget to stop and replenish YOU. I’ve known you for a long time and you are the ultimate fixer and caregiver, but if you fail to nurture yourself, the reservoir could run dry. Just some thoughts to share.
Love & hugs,
Yvonne